Saturday, February 13, 2016

to the women that saved my baby's life... every day

We didn't have good NICU/SCN nurses. We didn't even have great nurses. We had phenomenal nurses.

These women are incredible. They're special. They're called. They're dedicated. They're amazing They're so many things... But to me, mostly, they're heroes.

You have no idea how much your little choices in your life impacted mine.  You chose to get up every morning (or evening). You chose to drive to work. You chose to go to shift change and learn about my baby. You chose to save my son's life... every day.

When I was creating my birth plan I never thought of you.You never crossed my mind. I had never seen a NICU, I had never even imagined that you existed. I had no idea that for the first month of my son's life you would be the one caring for him. Most people have no idea what you do, they've never thought about it, much like myself before I was faced with the situation. Except now I know.

I know that behind those 2 sections of alarmed doors, behind the video doorbell security system, behind the parent scrub in station, and behind the check in counter, you pour your heart out into tiny little lives day after day.

I had no idea that you would be the one to change by baby's diaper. I had no idea that you would be the one to feed him his little bottles or rock him when he cries when I wasn't there. I never imagined that you would be the one to sit me down a week after he was born and hand him to me for the very first time. I didn't know that you would be the one to know his facial expression for when he was hungry or when he needed his diaper changed.  I didn't know you would be the one to talk to him in a soft voice when he started to get upset. I didn't know you were going to be the one.

 I was so jealous of you.

I was jealous that if you wanted to know how he was doing, you could simply look over at him. I had to call the hospital, give my 4 digit secret code, and ask you.

I was jealous that when he cried at night you were the one to comfort him.

I was jealous that you were the one to give him his first bath, give him his first feeding, and change his first dirty diaper.

In a very odd way I was even jealous that he peed on you when you changed his diaper rather than me.

Except I couldn't dislike you. Yes, I was envious... but I loved you.

Every single time I think about my little miracle's life, his story, I think about you.

I think about how you didn't just save my baby's life. In a way you saved mine too.

You taught me so much.

You taught me what it meant when Ben made a certain face, you had seen it for 12 hours day after day. You taught me how to breastfeed, even when it got hard. You taught me how to change his dressing on his omphalocele, and you did it calmly, knowing it broke my heart to have to learn that. You taught me how to feed him, how to burp him, how to hold him. You taught me his feeding schedule, you were perfect at it from your weeks with him. You taught me how to read his monitors... What a normal heart rate, pulse, and respiratory number should be. You also taught me not to obsess and stare at his monitors, but to read my baby. You taught me how do that.

You heard me.

You heard me cry over my son. You heard me pray for endless hours over him. You heard me sing to him, in my tired and raspy voice. You heard me read the same books in my same mommy voice day after day. You heard me struggle, you heard me rejoice.

You sat with me. You held my hand. You hugged me. You even cried with me. After the doctors left and I was in shock and had no idea what they were saying, you sat down beside me, looked me in the eyes, held my hand, and calmly explained everything, in words that I understood. You let me ask the same question over and over. You patiently answered the phone every hour and reassured me he was okay throughout the night.

Most people don't know what you do. They don't know you. But I do. I know that you save lives constantly. You think your job is just to save the tiny lives, but you save the grown up lives too. You helped me when no one else could.

You helped me during the darkest of days. When no one understood, when no one knew, you did. Most times you knew even better than I did.

You give your everything everyday to families in crisis. You spend 12 hours straight with 1 or 2 babies, watching over them and rushing to help them. When you're not at work you think about our babies. I've even heard you call and ask about the status of one of them while you were at home "relaxing."

I'm blown away by you.

What I'm trying to say is "thank you." Stupid words on a computer screen will never be adequate. I'll never ever be able to give back to you what you gave to me.

Thank you for teaching me, thank you for sitting with me, thank you for hearing me, thank you for listening to me. Thank you for holding my hand. Thank you for acting like it was perfectly normal for me get excited because he was finally able to be fed again or the fact that he pooped. Thank you for acting like it was normal for me to sob with you. Thank you for sending me home when you saw the dark circles under my eyes and my inability to keep my eyes open. Thank you for texting me pictures of him, even if maybe you weren't really supposed to. Thank you for choosing to do what you do. Thank you for deciding, every day, to save lives.

Most people have no idea what you do. They don't know how important you are or how crucial your role is. They have no clue that you play an incredible part in people's lives, but I do.

I know how truly amazing you are. I will never be able to tell the story of our journey without talking about you. You are a part of our miracle story. You are irreplaceable. You are giving and kind. You are selfless. You are impeccable. You are appreciated. You are so freaking appreciated. I am a better person for knowing you.

Choose joy,
Allison






Thursday, January 7, 2016

Empty Womb, Empty Room

I have written many pages in my journal about this. Through my tears, my vision blurred, I have written, but it has been very hard to type this post out.  It has taken me longer than normal to finish this post because it breaks my heart to write the words. I apologize for the delay.


Please don't read this and think that I am constantly a mess. I am a very proud momma, I love my time with my sweet baby. I am enjoying life not pregnant! I even got to go on a DATE with my handsome husband! There are many positives.

This is post is about my first days at home after leaving my baby for the first time. And those days were hard. Those days were dark.
.....

I was finally being discharged from the hospital. I had been excited about this day for quite some time. Although I had done my best to make that hospital room our "home," it just wasn't. It was time to go home, to my real home. For the first time in a while.

Everyone knows the rules, new mommas have to be rolled out in wheel chairs.

There I was, sitting in a wheel chair. Ben was walking in front of me, pushing a cart full of our bags and gifts from our families. My wheelchair was being pushed by our sweet nurse, and ordinarily, this sounds perfectly normal.

We got into the elevator, and with each level the elevator went down, my heart sank a little bit more. As we reached the ground level, I'm pretty sure my heart reached rock bottom.

My nurse rolled me out of the elevator and on towards the exit. And I couldn't help but to notice... to compare.  Most momma's get rolled out of the hospital in a wheel chair too, that we had in common. In that fashion I was normal. However in other momma's laps there were carriers that held babies.
Their new, fresh-smelling, perfect babies.

In my lap I held nothing.

My lap was empty.

My heart was empty.

The nurse handed me a bouquet of flowers, and then I held something. I smelled it, but it didn't smell like a new born baby.  I felt it, but I felt pricks from thorns, not the smooth skin of my beautiful, soft baby.

On the ride home I tried to come up with things to occupy my mind, my heart, but it didn't work.

We reached home just a short 15 minutes later, and somehow although I was holding flowers, bags, and pillows... my heart and my lap felt even more empty than it did before.

As I walked into my house for the first time in 2 weeks, I thought I would feel joy.  I missed the smell of my home.  I missed the excitement of my puppy Heidi, I missed the blue and white stairs that led me upstairs to my comfy bedroom, to my son's nursery we worked so hard on.  I missed the candles on the coffee table.  I missed my cast iron skillet on my stove. I missed it all. This now, even with the anticipation built, meant nothing. It all meant nothing... Because my heart, my lap, and my arms were empty.

I realized for the first time ever that I was home without my son.  And my heart shattered.

When we toured this house I was pregnant with my son. When we moved in, my son was in my belly listening to me unpack those boxes.  He was here when we decided on the paint color for his nursery. He was there for my months of bed rest.  He was here as I spent hours in his unfinished room, crying out to God to help me.

My son was there as my husband picked me up of the floor and ushered me to the shower. He had been here for everything.  But now, he wasn't here. Instead, he was lying in a diaper, under a heater and blankets, hooked to his machines, on the 8th floor of a hospital, and I was at our home.

I did my best to get used to life at home without my son. I saw my "choose joy" items, and now I had to work hard to choose that joy. I had to work hard to find it at home.

I tried to set up my home in a way that would make me choose joy-- I set up my pumping station in Ben's nursery. I was on a strict 3 hour pumping schedule, like my son was there and hungry, every hour he would eat- I would pump.  I set up a pumping parts cleaning station in his bathroom. All of this was so that I would associate Ben's areas of the house with something positive... Something MUSC's counselor's told me I should do.

But choosing joy at this point was hard.  Choosing joy, in those moments, was just impossible. Sometimes I think those counselors get paid to feed me bull crap. I'm just being honest. I did everything they told me, and I still felt empty.

My womb, for the first time in almost a year, was empty.  My son's room, was empty. My arms and lap were empty. My heart and my soul were empty. My eyes, after many hours, were empty.

I began to cry out, with almost dry eyes and a raspy voice, again to my Savior.  My prayers of healing my son were now more real. My prayers were from the heart of a broken momma, desperate for healing for her helpless son.

I pray for him constantly, with almost every conscious thought. I pray as I shower, as I pump. I pray as I walk from the entrance of MUSC and I make my way to his bed...I make those turns... I could do it in my sleep.... right, left, right, left, elevator....... right, left, ring the intercom, enter, left, turn in my cooler of breast milk, scrub in, right, right, right.... The whole way, I pray.

My prayers now are from the bottom of my heart. They are the most honest and the most real prayers I have every prayed before.  I praise Him for each tiny milestone we hit. I beg Him to protect my son, to hold him in His strong hands. I beg Him to heal my little baby. That is my heart's cry.

But I know He hears me. He hears this momma's heart, this momma's soul.  He hears this desperate momma's tears as I leave my son every night.  He hears this momma's loud sobs and tears at night as I sit in the nursery, pumping, not breast feeding as I so desire to do. He hears me. He sees me.

I'm getting used to my new life now. My life in the nicu.  I sit with him for hours now, I read to him, I talk to him, and I sing to him... I sing "Jesus Loves Me." I still can't make it through the whole song... Maybe only once or twice I have been able to.  The line "They are weak, but He is strong" gets me every time. I just weep.

I'm clinging to that simple children's song. Because just as it applies to my tiny, helpless son, it applies to me.  I am weak.  I am broken. I am needy. I am absolutely at my weakest, but He is strong. He's going to help me through this.  He's wrapping His strong arms around me, and He is comforting me.  He picks me up. He carries me. He walks with me through this journey. He's helping me find the joy in this. He's helping me celebrate each tiny victory. He's showing me, yet again, that He is faithful. He is the Ultimate Healer, and our story is far from over. Our story, our journey is just beginning.

Each day is a little better,. Each day I see that He is even more faithful. Each day brings hope.

Each day I become stronger. Each day, I am the best nicu momma I can be. Each day I can't wait to get my hands on my sweet little ducky, and I cherish those hours holding him, talking to him, reading to him, singing to him.

 Every single day, my Ultimate Healer heals my heart just a little bit more.



Choose Joy,
Allison












Tuesday, December 29, 2015

The Best Christmas Gift



It was quite a different Christmas season all together. I missed my Christmas Eve traditions- shopping at the mall with my mom (not because we needed anything, but because we are crazy), getting out in the hustle bustle, buying Christmas PJ's for Ben, Christmas Eve service at First North, spending time with my family eating our usual Christmas Eve dinner of oyster stew. I just missed the tradition!

I decorated our little hospital room, "home" as we had come to call it, with a small Christmas tree from Ben's nursery, paper chains that I made, and Baby Ben's stocking. I filled the air with my favorite holiday blend of essential oils, I did everything I could to make it feel "Christmassy."

Christmas Day we ate a "holiday feast" from the cafeteria downstairs. I have to say, I wasn't mad at that meal! It was pretty yummy, considering. I passed out small gift bags to the nurses, I wore my snowman shirt that I made, emphasizing my large pregnant belly, and everyone here got quite a kick out of it. I said "Merry Christmas" to anyone who would look my way. I was trying... hard... to make this a joyful Christmas, even though we were "stuck" here.

Katie and Bryan, some sweet, selfless friends, came to visit, along with some family members! We opened some gifts and that brightened our day. We all love gifts, right?!

Throughout the whole day (and day before) I was definitely uncomfortable, but I didn't think much of it. I've been uncomfortable since October 15th, the day we were first admitted to antepartum at MUSC. So I just kept on, determined to celebrate Jesus' birthday the best I could.

Meanwhile, Baby Ben had his own plans. That boy is determined, I tell ya! I was having contractions pretty consistently, but again, I didn't think much of it. As the day passed and evening fell I realized this wasn't normal. I called the doctor in, and I heard what I already knew he was going to say... "We are really shooting for Tuesday!" At that point, to say I did not like that doctor was an incredible understatement... I was in some serious pain.

I'm a pretty calm person, my voice level has been perfected due to years of teaching, I can remain calm in just about any situation. When I envisioned being in labor I totally thought I'd be calm, quietly enduring each one. HA!!!! Nope. Not me! I shouted, I cried, I said mean things, I apologized, etc... Yeah, definitely not what I envisioned, but hey, mommas out there-- you know where I'm coming from!

As the hours passed and the contractions became excruciating, he finally believed me that we were having our baby that night. I had been in active labor for  many hours, and I was dilated to a 5, all without any medication. My poor husband's hands were various shades from white to purple due to me squeezing them with every ounce of strength I had. He listened intently as I explained my not- so- nice feelings about this doctor, and he did his very best to encourage me through every contraction, keeping tabs on how frequent they were. When I thought I couldn't handle it anymore, he was so supportive. I desperately needed him, and he was amazing. Thanks babe, and sorry I yelled so much!

I was relieved that that silly doctor finally believed me. I didn't hate him quite as much. (Doc, if you're reading this, you know we're cool now, but I'm pretty sure you knew how I felt about you in those hormonal, painful hours!)

I was feeling so many different emotions... fear, excitement, panic, joy, elation, sadness, you name an emotion on that crazy spectrum and I bet you I was experiencing it. It was a crazy feeling.

I was finally rolled into the OR in Labor and Delivery at 11:04 pm (5 hours after my active labor began) where I was prepped and finally received that much needed pain medication in my back. Ben was dressed in his "dad scrubs," and he finally joined me in the room around 11:20. I have never been so excited to see that man, as funny as he looked in his blue booties, scrub pants and top, mask, and funny hair net. I needed his comfort and support!

They began the c-section, and I just constantly prayed. I had confidence in the doctors, they're the best in the world. I really wasn't worried about the baby being ready or being born too early. For some reason, that wasn't really a fear anymore at all. My biggest fear was that the membrane on his omphalocele ("o") was going to rupture. There was a super thin membrane holding all of his little organs in, and if that ruptured we were going to be facing some devastating situations. I prayed every second of that c-section... Every second.

At 11:48 pm on Christmas Night my amazing son (oh heavens, I can hardly read what I'm typing through the tears!) was born. My Benjamin Michael Peters was born! They lifted him for 1 second, and I could only see the top of his head. Then he was gone.

They rushed him out of the room with hushed voices and wide- eyed looks at one another. Only their eyes were showing, their masks and hair nets covered the rest, but it was obvious. I could see it all in their eyes, they just hadn't said what was wrong yet. But as they were flying out of the OR with my brand new baby boy that I could not see, I heard it. I heard the most gorgeous, beautiful, fulfilling noise I have ever heard. I heard my son cry. And I wept.

As they were finishing up with me, my husband got to go see Ben get cleaned up and prepped for NICU. As I'm lying on the table, they said they had some information for me. My heart sank. "Great, here it comes..." I thought to myself.

They told me that his membrane had been "nicked" during the birth, but it did not rupture. There was a small hole in the membrane. If it's kind of hard to imagine what I'm talking about, imagine blowing bubbles with a child. That bubble is about how thin the membrane is, somehow holding in his intestine, bowels, liver, and some of his stomach. They worked quickly to repair the small hole, and somehow, they did it.

Yes it had a small hole, but the membrane did not rupture!! Add that to the list of miracles that God has performed throughout this journey.

A little while later, I was in recovery, and my husband joined me. I have never seen my husband look like this. I have never seen him stand as tall as he was, I have never seen that sparkle in his eyes, I have never seen his face glowing quite like it was just then. This man was proud. He was a proud daddy, and it was such a precious sight. He melted my heart and I fell even more in love with that man than ever.

They finally let Baby Ben come in the room before they took him to NICU. We had about 3-4 minutes. He was laying in an incubator on his side, facing me. I have never felt so much love in my life. His eyes were wide, and we connected our eyes for just a second. I got to touch his foot, and I just wept.

There, in front of my eyes, was my miracle baby. The child that God had sustained for 2 months and 10 days in my incompetent womb was finally here. The child that so many people had been praying for was here. The child that I have felt kicking and turning in my belly for months was here. My son, my baby, my everything, was here.

God is writing the most beautiful story though Benjamin Michael. He has used my son in so many ways already while inside my tummy, and I can't imagine how He's going to use him here in this world. I am overwhelmed with gratitude and thanks to my God, who has had His hand on my son from day 1 of this long, rough journey. I am so excited to be able to be a part of Ben's love story that our Father is writing.



Father,
Thank You, thank You, thank You! Thank you for caring for Ben. Thank You for sustaining him in my incompetent tummy for so long. Thank You for working miracles. Thank You for protecting him, for protecting that bubble- thin membrane. Ben is Your child before he is mine. Please continue to write his story, it is already so beautiful. You have made Yourself so evident, so real, so obvious throughout this journey, and even more so now, as this miracle baby breathes on his own in this world. I pray that with every breath from his little lungs that You would be glorified. When people see my baby, may they see Your face, Your handy-work, Your power, Your miracles. Thank You, Jesus. I love you.

...
Our journey is far from over. In some ways, it's just beginning. Our next chapter is life in the NICU, and I have already learned that no matter how hard I attempted to prepare myself for this, it is impossible.

Thank you to those of you that have dedicated time to spend in prayer for Ben. Thank you for helping this miracle baby enter the world. As we see, the power of prayer is undeniable. Please continue to cover my little family in prayer. As we move to the next chapter of our journey, please cry out our names to our Lord, to our Jehovah Rapha.

Merry Christmas, friends! I hope you all had a wonderful Christmas. I certainly received the most amazing Christmas gift I could ever imagine!

Choose Joy,
Allison (Mommy)



BMP loves his pacie!




The day Ben can wear this shirt we will throw a HUGE party! 
He is truly our miracle baby! 

Sunday, December 13, 2015

Remembering His Greatest Promise

I've dreaded hitting the publish button on this one. What will people think when they read my deepest fears typed out into real words? Some of these I haven't even said out loud. Will this transparency translate to "bad mom" or "weak"? Well, this is my heart. I am a human, a scared human.
- A



Some nights I sit in Ben's nursery and I look out the large windows and I see all of the stars shining in the sky. The sky has been so clear, and I can see every single star sparkling like glitter on a beautiful ribbon wrapped around a Christmas gift.

I wasn't really thinking about anything. I was just sitting. My mind was wandering. I realized that every star I saw that night, I was thinking of a fear I have about my son.

Will his stomach float out more into the omphalocele?

Once he comes, will the doctors and surgeons say it's worse than they expected?

Will he be made fun of by other children when he goes to a swim party because of his large scar across his tummy?

The looks from other moms when they see this defect growing from his tummy.

Will he be able to be fed?

Has he gained enough weight?

Will he be able to breathe on his own?

The first time I see the omphalocele, not in a picture, but in real life. On my tiny baby.

How will that make me feel?

Can I handle seeing it?

Will he make it?

Will several surgeries be too much for his little tiny body?

.......


That night I was overwhelmed with fear. The kind of fear that makes you feel like you're about to throw up, the kind of fear that makes your whole body sweat even though you have chills, the kind of fear that makes you shake and quiver, the kind of fear that takes over your body and your mind.

I'm just plain scared.

When I came out of that dark place in my mind I prayed my prayer of little words.

You know, He never ever promised that things would be perfect. He never promised that things would be easy. In fact, most people face pretty crappy situations in their lives. People face horrible tragedies, loss, crisis. He never promised it would be perfect, and it sure isn't.

He did, however, promise to be enough. And He is.

I just have to trust in Him, there's no one else that I can trust in.

I believe that He's Jehovah Rapha, the Ultimate Healer.

I believe that He's more then enough for me, more than enough for my baby.

I also believe that there's a reason that all of this is happening around Christmas time. The greatest promise that He ever gave to mankind was in the form of a baby. I bet you Mary was terrified. Their situation was so far from perfect. Can you imagine how Mary must have felt? Probably even more scared than I am. Their situation was terrible. No place to stay, going into labor, and riding on a donkey. Let me tell you one thing... If Ben suggested I hop up on a donkey right now and make a long journey I'd punch him square in the gut! Literally, nothing went right for them leading up to the birth, but look what that terrible situation turned into.

It's amazing that His greatest, most powerful, amazing promise was a baby.

Your situation may be absolutely terrible. Your journey may be ugly. Your heart may be broken. And that's okay. We're human.

Momma, it's okay to be scared. Teacher, it's okay to be exhausted. Daddy, it's okay to feel burdened. Secretary, it's okay to feel annoyed. Wife, it's okay to feel lost. Student, it's okay to feel stressed out. Daughter, it's okay feel distraught. Who ever you are, whatever you do, you're a human and you will feel these horrific feelings.

But many years ago there was a baby, and that led to a cross, and that led to an empty tomb.


I am scared. No, I'm terrified... But I'm not going to let that darkness over take me. That baby is our refuge. He's faithful. He's with me. I'm not alone. I know I'm not. He walked this journey before me, and He's walking it with me now. He is taking my fear, and He is drawing me closer through that.

You're not alone. Just remember that incredible baby that changed our world.






Choose Joy,
Allison


Sunday, November 22, 2015

Ben's Mom

Friday we had another round of appointments at MUSC. Things went well, nothing had really changed... Ben is still ready to make his entrance into the world, but we are continuing to pray he stays put at least a little longer! This day of appointments was filled with much less anxiety than the last visit! We got to see his sweet little face, and that always makes me so happy!

Friday was the first time I had felt good about myself in weeks. I had brushed my hair, even ran a flat iron through it, I had makeup on, and I had even put on real clothes! (Ladies that have been on bed rest, you know that's a big accomplishment!) We decided that since I felt good, we would go to dinner! A real dinner! Not propped up on our bed in a maternity tank top, not sitting on the couch with crazy wild hair that hadn't been brushed all day. A real dinner.... At a restaurant!

Ben chose a place that was close by, of course! We walked in to this place I had never been before and we ordered and we began a light hearted, fun date night that we so desperately needed. We giggled, we talked about Ben, we played, we joked. It was perfect.

During our wonderful meal a lady approached our table. A "stranger." She stopped and asked me quietly, "Are you Ben's mom?" Caught off guard, I said "Yes." She introduced herself, and we chatted for a couple of minutes. Somehow she had stumbled across our story, and she had been following Ben's journey and progress, and she recognized me from the pictures. She encouraged us in our long, rough journey.  I was so glad she came over to our table! She was kind hearted, and she spoke from a genuine heart. She had no idea how huge of an impact she would end up having on me, and to be honest, it hadn't sunk in all the way for me either.

I really appreciated all of her heart-felt encouragement, but the most powerful thing she said to me were the smallest of words, "Ben's mom." She asked me if I was Ben's mom.

I hung on to that.

It resonated in my mind for the next few hours.

Ben's mom.

Later that night, I sat down in my place, my peaceful gray glider in the nursery, and I looked at the new ultrasound pictures that were printed for us earlier that day. He is getting bigger; I looked at his precious face, his perfect hands, his strong little features. I hugged my belly tight, able to see his little kicks through my blue sweater night gown... and I was overcome with emotions. Yes, absolutely, I am Ben's mom. I am Ben's MOM!

In my 28 years, I have had many names, many roles:
believer
wife
teacher
daughter
friend
sister
etc...

But tonight for the first time I heard my new name from the lips of a stranger new friend. And that name was beautiful. That name was powerful. That name is so humbling... To know that God is allowing me, a nobody, to be a part of little Ben's huge miracle story.

Ben is already making an impact on people. He is already proving that this isn't all about science. My son is showing the world, already, that God is still creating miracles daily. Ben's story is going to be heard by many people.

I am truly not worthy of such an enormous role in Ben's incredible story. My body is supposedly not capable to endure this role, but I am so grateful He is giving me the opportunity to be a part of this. I'm just thankful to have the opportunity, this chance.

My new name is so beautiful, so wonderful.... It is So. Incredibly. Humbling.

Ben's mom. Ben's mom. That's me! I am Ben's mom, and I am filled with joy because I have been entrusted with that name.

Choose Joy,
Allison



My Precious Son-
You are a miracle. You are so incredibly loved by so many people. You are a gift. Your name is cried out before our Lord by many, many people. You are proof of the power of prayer.

You are going to have to overcome major physical hurdles as a tiny baby, but you can do it. You are fierce. You are a fighter.

One day you are going to move mountains. You are going to continue to defy all odds. You are so strong. You, my sweet baby boy, will be a living testimony of the power and strength of our Anchor. I can't wait to watch you walk your journey.

Keep fighting, Ben. Keep growing big and strong in my "incompetent body." Keep defying odds. You've got a beautiful journey ahead of you.

Momma loves you.

Friday, November 6, 2015

Anxiety and Anchors

"We have this hope as an anchor for the soul, firm and secure." 
Hebrews 6:19
 Image result for anchor

Yesterday we sat in the waiting room that I've come to know so well. 3 big pictures of Downtown Charleston on big canvases, a TV in the corner that always has terrible shows on, and an out of order water machine. The room was filled with anxiety, my anxiety. It was pretty palpable, and apparently my face totally gave me away, despite my efforts to hide it. 

We were there to have my cervix, my  incompetent cervix, measured. We learned that it was short a while back, and that means preterm labor. Another dreaded date with that horrible ultrasound thing. Not the fun kind. I know what to do, I've done it too many times before. So there, in the small room, filled with machines and screens I did what I needed to and waited on the table for her to come back in. 

I sat there, exposed, waiting to hear, yet again, how my body wasn't good enough for my baby. Technically, my body is incompetent, and I'm tired of hearing it. I'm tired of hearing I can't provide a good enough place for my boy to grow big and strong. 

At this point I'm completely anxiety ridden. Convincing myself not to have a panic attack in that dark room. We learned that my cervix is now half a millimeter, and that's all that's keeping baby Ben in there! He's also head down, ready to come into this world. (He's already hard headed and determined like his Daddy.)

Lying there, listening to the ultrasound tech, fighting back tears, holding off a panic attack, and staring at the off white, speckled tile on the ceiling I remembered I just need to be hopeful, I just needed to cling to my Anchor.
 
Some girls have beautiful pregnancies, full of delightful ultrasounds, positive appointments, and butterflies as they await meeting their doctors. I'd be lying if I said sometimes I wish mine was a little more like that, but that's not our journey. That's not in our miracle story. Our visits are a little less beautiful, and they're a little less positive. Basically I just try not to pass out or throw up. Don't get me wrong, friends... I LOVE being pregnant. There is nothing I delight more in than feeling my precious son wiggle and dance in my big belly. It's the most precious thing in the world. But when it comes to the appointments, that's where it really just stinks. Ever since September when we found out about the omphalocele we have not had 1 appointment where it was completely fine or positive. And that can wear ya down, especially a hormonal pregnant woman. (Especially one who cries over simple things like mozzarella sticks and fruit cups!)

So now in the even smaller exam room, I waited for the doctor, my favorite doctor in the group. The nurse came in and I was convinced she was hiding bad news from me. I immediately asked her what was going on, just tell me, don't make me wait for the doctor. She backed up with her hands up and said, I was just asked to take your vitals! Poor woman. The doctor finally came in and  he brought in a woman that I have seen around, and who has worked with us because we are high risk. In my panicked, anxiety ridden mind, that meant he was going to give me bad news and this woman was going to console me. It's amazing what your mind can do to you. As soon as he walked in he noticed my radiating anxiety and tried to make me feel better, as he carefully guided and guarded his words as to not give me false hope. They do that so well... 

Ultimately, nothing else, really important, was wrong now that we didn't already know about. (Except the cervix being almost non existent). 

We know about the giant omphalocele. We know what organs are outside of his body. We know that his stomach is small for his body, but that is to be expected with his "o." We know my cervix is incompetent. We know he's trying to come early. We know it's very scary to combine the "o" and premature birth. We know, we know, we know.

But truly, I have hope. I have to. I've been clinging to Hebrews 6:19 lately, and I just have to claim it. "We have this hope as an anchor for the soul, firm and secure..." He is our anchor, He is our hope, He alone provides that security. 

At this time in my life, I have really experienced that hope, I have experienced Him being my only anchor. I have learned to stop saying "Okay... what else could possibly go wrong?!" Because something else can always go wrong, I promise. 

I've moved on to a season in my life where I just have to cling to hope, cling to my Anchor and accept our journey full of challenges, embrace our miracle story.

I am a part of a couple of support groups, and I have learned that, although our situation is truly terrifying, although my heart is shattered for my baby boy, and although I know this road is going to be a hard, rough, long journey, we actually have a lot to be thankful for. 

I'm going to continue to choose joy. I'm going to continue to be hopeful. I'm going to continue to cling to my Anchor. Because if I don't, I couldn't make it. That's the absolute only way I can face each scary day filled with the unknown. I decided to incorporate the anchor theme into Ben's room, which has also served as my "war room." (Check out the pictures below!)

I encourage you to cling to our Anchor in your own journey, friends. It's really the only way.

Choose Joy,
Allison


Check out what Team Peters has been up to in our little world for the past couple of weeks!


Ben working hard on the wall above the crib!






Finished this part of the wall, and almost finished crib bedding! 




Sunday, 27 weeks! 




Heidi being the best bed rest companion ever! She never leaves my side!


Thursday, October 29, 2015

My Father

Over the past couple of weeks I have been overwhelmed by the amount of people that care for us.  People have reached out to me telling me that they are praying for my son, I have received cards (which I'm making into a book for Ben), people have sent messages, texts, and calls checking on us, praying over us, and just talking to me- taking my mind off of what's going on. People have sent food, movies, books, arts and crafts, magazines, and items to keep me busy while I'm stuck in the bed.

Truly, our fridge, pantry, freezer, and hearts have never been so full.

People are making it easier for me to keep baby Ben "cooking," and I am so thankful. I am so incredibly thankful for each and every person that has gone out of their way to reach out to us in some way. I absolutely can't wait to tell my son about the amount of people that care about him already!

THANK YOU, FRIENDS!

During my hospital stay my mom was sick with a fever, and you best believe not one person on staff at MUSC would allow her to come anywhere close to that building! I knew she wanted to be with me, I knew she wanted to hug me. I now get that "mom feeling" of just wanting to do anything possible for your baby.

My mom got to feeling better, and a few days ago my parents came to visit. I was so anxious to see them. Sometimes all a kid needs is time with their parents. If you haven't gotten to that stage in your life, you will. You go through that phase when you think you're a grown up and you can totally handle "adulting" on your own. HA! Trust me, you'll always need your Mom and Dad.

Anyway, my parents came at just the right time. I was so tired of laying on my back, sitting on the couch. Staring at the same walls. My dad carefully unpacked every food item people sent, cleaned out my freezer and restocked it. My dad listened and prayed. They brought me new clothes that will be comfortable wearing while I'm stuck on bed rest. My mom carefully selected movies, old and new, to keep me entertained, she brought me a beautiful coloring book, colored pencils, and a sharpener. She brought me a stuffed animal that played calming sounds. She literally thought of everything.

I was thankful. Truly, I was extremely thankful for each item that they lugged in with them. But more than any tangible thing, I was so incredibly thankful for their presence. Being near them was exactly what my child like heart needed at that time.

Because I'm on bed rest, I obviously can't do much, but we got to do a little bit! We went to lunch at one of my favorite places, and we drove around all over Charleston (within my prescribed 20 mile radius of MUSC, of course!) They got me out of the house and got me into the car for some fresh air and some "new" sights. We talked about the heavy stuff, we talked about light-hearted things, we laughed, we were just together, and I needed nothing more, on that day, than to be with my mom and dad.

As I looked back and reflected on that time with my incredible parents, it reminded me of the relationship that we, as believers, have with our Father. He has many names, and Abba Father is such an important one.

We are His children. He desires to care for us, He desires for us to depend on Him. Let me tell you... Never before in my life have I been so dependent on Him. Ben and I are constantly facing battles lately, and it absolutely takes a toll on us physically, financially, and emotionally. But I have a Father to turn to.

I am so thankful to have a Father that cares for me.

A Father that understands my situation when no one else does.

A Father that listens to my heartache.

A Father I can cry to.

A Father that pulls me just a little closer as I sit in my place and yearn for my baby to be okay. 

A Father that can comfort me when the pieces of my heart are scattered on the beige carpet of my baby's nursery.

A Father that picks me up off of that beige carpet, and carries me.

The only way I have made it this far in this rocky journey is because my Father has carried me. When my heart is too heavy to keep filling out detailed paperwork about my son's defect, He carries me. When my ears are too tired to hear any more bad possible situations, He carries me. When my team of doctors ask me life altering questions and I am too heartbroken to form words, He carries me. When my eyes hurt from looking at those annoying sea turtles yet again, He carries me. When I literally can't make myself walk into MUSC for yet another dreaded appointment, He picks me up and He carries me.

I am so very thankful for my Father. I don't know how people go through life, full of ups and downs, full of issues and problems, full of heartbreak, without a Father. 

No matter what you're facing in your life: scary test results, parenting issues, big purchases, loss, heart break, let our Father carry you, friends.

"You are my Father, My God, and my Rock..." Psalm 89:26

Choose Joy,
Allison